Sixteen-year-old Henry was diagnosed with cerebral palsy as a baby. While cerebral palsy isn’t fatal, Henry suffered from seizures and complications that evolved into Lennox-Gastaut Syndrome, a form of epilepsy. When Henry was eight years old, he experienced a sharp decline and his family was referred to palliative care at CHEO and Roger Neilson House.
Pediatric palliative care is a steady arm for families to lean on. It allows Henry’s family to make their time together the best it can be and helps ensure that Henry’s medical care is balanced with play and fun. Thanks to the dedicated nurses, doctors, recreation therapists and social workers at CHEO and Roger Neilson House, this happy young man with his big personality, love of humour and keen ear for music, is making the most of every day.